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	<title>Song Without Words</title>
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		<title>Song Without Words</title>
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		<title>Going Public with Dementia</title>
		<link>http://songwithoutwords.wordpress.com/2011/09/05/going-public-wth-dementia/</link>
		<comments>http://songwithoutwords.wordpress.com/2011/09/05/going-public-wth-dementia/#comments</comments>
		<pubDate>Mon, 05 Sep 2011 14:18:33 +0000</pubDate>
		<dc:creator>Sarah</dc:creator>
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		<description><![CDATA[I want to go public with my Dementia. I kept it a secret for years. I was diagnosed with Primary Progressive Aphasia (PPA) in 2003, but my speech was the only problem. My doctors were puzzled why I could retain my written language and I could understand oral language as long as long as I [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=songwithoutwords.wordpress.com&amp;blog=3716290&amp;post=78&amp;subd=songwithoutwords&amp;ref=&amp;feed=1" width="1" height="1" />]]></description>
			<content:encoded><![CDATA[<p>I want to go public with my Dementia. I kept it a secret for years.  I was diagnosed with Primary Progressive Aphasia (PPA) in  2003, but my speech was the only problem. My doctors  were puzzled why I could retain my written language and I could  understand  oral  language as long as long  as I did.    Finally they changed my diagnosis to Frontal Dementia with Apraxia.  I was happy because PPA  progresses to dementia  but the patient loses all their language both oral and written.<br />
I want to say that I don’t plan on writing every day. I just figured it would to be easier to send web blog address to everyone I knew than to send attachments to everybody.</p>
<p>Last year, I asked a lot of you to pray for me when I was invited to “speak “about living with Dementia to a graduate class at the Center for Brain Health in Dallas. I wrote out the speech and they read it and then they asked me questions to show how I confused I get with oral language. I have included that presentation under the tab at the top of the page and to the right of the page.  It’s entitled “Living With Dementia.</p>
<p>I wrote some poetry when I was dealing with having to retire from a job that I loved: teaching teachers in a graduate level class. They were kindergarten through second grade teachers and the class met once a week and during the week I visited in their classes and demonstrated and helped problem  solve. The collection is called “Song Without Words” and it is dedicated to my dear husband, Mike and I have included it too. It is in the tab at top of this page and to the right of this page called “Poetry”.</p>
<p>There is also a tab called Verses. These are my Bible verses I try to read every morning. I have shared them with a lot of you. They have helped me and comforted  me.</p>
<p>I want to express my appreciation to all of you. I couldn’t had made it without your prayers and I want to thank my lovely daughter, Rachel, for helping me set this blog up.<br />
And most of all I want   to thank my God and his Son Jesus, my Saviour, and the Holy Spirit, who comforts me.</p>
<p>If you see an inappropriate youtube film. I don&#8217;t how to get rid of it. If you know  how to get rid of it please contact me </p>
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